NOTE: Our website has moved to: http://socialmediastolemykidney.com/

The woman who sent me this is my mom’s 82-year old neighbor. She gave my mom $50 for our film. Your $50 could buy… LaVon's card Screen shot 2012-10-20 at 9.14.19 AM Amy Donohue (that’s me!) saw a tweet one night in January 2011. A friend’s mom had just agreed to be put on the kidney donor list, as her kidney disease was getting worse every year. Amy saw the tweet and responded “I’ll do it. I’ll donate my kidney. What do I have to do?” During the testing process, Amy lost her job, got a new one, met amazing people in the community, and learned about life and love. So, it’s a documentary about a kidney donor on a cross-country trip. Her goal? To meet as many other donors as she can, tell their stories, and bring awareness to live organ donation. All of the donors were “met” via Social Media.  By showing all these donors living normal, happy lives, people will be less afraid to donate and hopefully be inspired to do the same! People are asking me every day what they can do to help. We will be having fundraisers, but the thing we need the most help with right now is contacts. We have emailed major hotel chains, but nobody has gotten back to us. If anyone has any contacts in that industry, it would be greatly appreciated! We will also be needing new camera equipment. I’ve reached out to Panasonic and JVC, to no avail.


48 thoughts on “About

  1. Hey, I live in Calgary Alberta Canada and in April 2011 I had a living double lung transplant. Not sure if you would be interested in talking to me about your documentary or not. I am the 7th one they’ve done in western Canada.

    Posted by Deanna Christopher | October 23, 2012, 3:34 pm
  2. Looks like you are heading to Calgary – you have to meet Lauren Herschel. She donated her kidney altruistically. http://tomakeachoice.blogspot.ca/ And four weeks ago today my husband donated his kidney for my sister as part of a 3-pair living donor exchange. http://jacquelinenemeth.com/ There are so many amazing stories out there – incredible that you are going to showcase them. If you make it to Ottawa – capital of Canada – let me know.

    Posted by Kerry M | October 24, 2012, 1:00 am
  3. Hi Amy, a friend of yours on Reddit gave me your information. I’m looking into doing altruistic kidney donation here in Phoenix. I’d love to chat with you about your experience. You can email me at lya.gardner@gmail.com. Cheers 🙂

    Posted by Lya | October 30, 2012, 5:17 pm
  4. I just found this site and have not read through much of it yet. But it sounds like a wonderful idea.
    I am a kidney patient in need of a kidney.
    I am curious about what you want from the major hotel chains? Is it lodging while on your journey? If so, have you thought about other types of lodging? Perhaps vacation homes?

    Posted by jean | December 5, 2012, 1:49 am
    • Hi, Jean!
      Thanks so much for reading!! We are looking for lodging along the way. Vacation homes are a good idea, too! Thanks for the suggestion!
      Amy :}

      Posted by fabamy | December 5, 2012, 1:54 am
      • I have a three bedroom vacation home near Somerset, KY. Let me know if and when you might be in that area and I will see what kind of arrangements can be made.

        Posted by jean | December 6, 2012, 2:21 am
      • Oh my gosh, Jean, that’s awesome! We will be hitting Kentucky on the way back, which may end up being near Memorial Day. Do you usually rent it out then?

        Posted by fabamy | December 6, 2012, 8:30 pm
  5. How many rooms do you need? We have a large home and could possibly put some up. 30 miles north of Baltimore.

    Posted by Pam | December 29, 2012, 12:03 am
  6. When will you be in the Baltimore area?

    Posted by Pam | December 30, 2012, 5:03 am
  7. Just celebrated two years since donating my kidney. I’m now on advisory committee of Kidney Foundation of Canada planning fundraising events: the most recent was an October, 2012 gala evening with Natalie Cole! Here’s my donation story featured: http://wowsstillbeingcelebrated.yolasite.com/n-jacobs.php. Good for you, Amy! You are certainly a great example of making opportunity knock!

    Posted by Nellie Jacobs | January 4, 2013, 12:19 pm
  8. Are you aware of http://www.kickstarter.com, a fundraising platform for creative projects? Also, have you approached your donor hospital foundation, kidney organization, etc. for support? Where are you located and where do you plan to travel? I’m interested in more information about you and your intention in order to think of possible contacts. If you don’t mind, email me so we can brainstorm.

    Posted by Nellie Jacobs | January 4, 2013, 12:38 pm
  9. Hi Nellie! Yes, I have looked into Kickstarter. I actually may be able to forgo that route, though, with investors.
    Congrats on also being a donor!!! Do you know Lauren Herschel?

    Posted by fabamy | January 4, 2013, 4:44 pm
  10. Cant wait to see the finished movie! I was aware of organ donation and always said I would be an organ donor. At the time of my decision I thought that would be great to help someone else once I pass. Little did I realize at the time that there is also living donation but was made more aware of it when my stepdad was diagnosed with PKD in 1999. He was then put on the transplant list in May of 2012. I began the process of being the potential donor in July 2012 and was found to be the match in Oct 2012. Our donor/transplant surgery was Nov 29th 2012 (almost 6 wks ago) and we are both doing great. If I can be of help please let me know. Thanks for what you are doing.

    Posted by Lauri | January 6, 2013, 6:45 pm
  11. Hey! Do you use Twitter? I’d like to follow you if that would be okay. I’m absolutely enjoying your blog
    and look forward to new updates.

    Posted by The Kidney Stone Removal Report Review | January 10, 2013, 9:44 am
  12. Amy, I love the concept of what you’re doing with the movie. You’re personal story is amazing….such an unselfish loving act, you were fearless and brave. You truly are very special!!!!!

    Posted by kristin | January 20, 2013, 7:42 am
  13. Wow! I donated a kidney to my boy friend in October of 2012. I feel great. A friend of mine sent this to me via face book. Because she thought this was perfect for me. Me and my boy friend are celebrating our third year anniversary this week end and we met on Face book. I blogged about my experience on tumblr. The blog name is mykidneyadventure. Read about us. We had plenty of support, held fund raisers with the help of an organization called Help Hope Live. You have got to contact me. This is our life and we would love to help. Deneen126@yahoo.com

    Posted by Deneen Davis | March 3, 2013, 1:38 pm
  14. My hubby works law enforcement and donated to our son we are at 5 1/2 years.

    Posted by Destiny | March 22, 2013, 11:46 pm
  15. Hi, I am also a kidney donor but my story starts even before my donation, 5 years ago my father in law who suffers from diabetes was in need of a kidney I was tested as potential donor but sadly was not a match (it was heartbreaking because based on his blood type he would be a universal donor but was very limited to who donate to him) so after several other family members being tested it was looking very grim his Dr’s told him he would need to start dialysis because his kidney fuction was quickly deteriorating. A co-worker of my mother in laws (teacher at the school she works in) heard about my father in laws condition, prayed on it discussed it with her husband and she decided “if I was given two (kidney’s) and only need one, how do I know it wasn’t meant for one to be given away”, with that she went to be tested. Initally she was turned away because she had never even met my father in law, so she was asked to meet with him first before deciding that she wanted to go through with the testing. She and her husband met with my in laws and ultimately decided to move forward, she was tested and was a perfect match!! They are both living happy healthy lives.

    Three years ago I learned that a co-worker (single mom, just married and only 29) was in need of a kidney transplant. Since I wasn’t able to help my father in law, I wanted to pay it forward on behalf of the person that did. I was already on file at Mayo (and knew we had the same blood type) from being tested for my father in law I asked if it would be OK to move forward with the rest of the tests to see if I was a match for her. After all testing it was determined that I was a match for Randi, less that a few weeks later we were in surgery. The transplant was a success I feel great as does she and since then she and her husband have welcomed a beautiful baby girl to their family.

    We will be participating in the AZ Kidney walk next month, our team name is Recyled Parts. 🙂

    Posted by Recycled Parts | March 23, 2013, 12:28 am
  16. Hi Amy,
    I live in Louisville Ky and donated a kidney altruistically Dec 2011. If you pass through Louisville let me know

    Posted by Candy C | March 23, 2013, 3:49 am
    • That is awesome, Candy! Did you check the map? I am not sure how close we will be getting to you. Would you mind emailing me a picture and donation details? Date, where donated, etc., is what we are looking for. Though we already have everyone who will be interviewed, we will be having photos of you all throughout the film.
      Thanks for contacting me!

      Posted by fabamy | March 23, 2013, 6:31 pm
  17. What an awesome story. Your friend, Stacey Champion, suggested I read your story. My husband gave me a kidney 10 years ago and because of this gift, I gave him son! Best of luck to you.


    Posted by Sheila | March 24, 2013, 2:49 am
  18. Hello, this Randi I’m Bonnie’s recipient. Thank you for checking on me, I feel great since the birth of my daughter.
    Can’t wait to meet you at the kidney walk!

    Posted by Randi | March 26, 2013, 1:32 am
  19. hello,

    my names are Robert Lawson, a 38 years old, the doctor confirm that my two kidney well OK that i can use one kidney, and i want to give out one of them to who ever needs it, because in my life i made a var that i will save life know matter what it will take from me. of what use it is to me if i can not help that one ding soul. do not ask me why, because it is what i have made up my mind to do.
    i pray that you will not die but live.

    You can contact me on Email: agbatorlawson@gmail.com

    Mr Lawson.

    Posted by Robert lawson | April 10, 2013, 6:06 pm
  20. I just heard your interview on NPR & was brought to tears. Then I realized you are right here in AZ!!! I donated a kidney to my brother once I was old enough to do so, and it was never even a “decision” to consider. After almost 10 years, my kidney failed him sadly, and he has been on the “waiting list” ever since. 😦 I applaud what you are doing to raise awareness, and would love to offer to help out in any way. I have a gallery in Downtown Mesa if you ever need a place to hold an event/fundraiser/gallery show to raise awareness/funds!

    Posted by Amy Del Castillo | April 10, 2013, 7:07 pm
  21. Hi Amy. I heard you on KJZZ with Steve Goldstein yesterday. Good for you and your kidney recipient. Today my cousin and I are celebrating the two year anniversary of our miracle. He suffered with PKD for several years so I gave him my left kidney at Legacy Good Samaritan Hospital in Portland, Oregon. My husband and daughter and our dog, Hazel, traveled with us to Portland for support and our entire family and our friends were praying for us. Greg’s sister, Karen, made them test her twice before she gave up because she was not a match. When I heard about Greg’s situation and found out we shared the same blood type I volunteered to be tested. We had an aunt who suffered with PKD for many, many years and I didn’t want any other loved one to go through years of dialysis like her. Of course, from all the tests I found out I do not have PKD so I could donate to Greg. Also, because I’m clear of that disease, I didn’t give it to my two children. I’ve been ready to spread the word for awhile. We have a Donate Life plate on our car. The hospital gave me a sweatshirt that says “Got 2, Give 1, I’m a living kidney donor” so our plate reads GT2GV1. You may hear from my Greg too. He has so information much to share from the point of view an intelligent and very grateful recipient. We’ll be looking forward to your documentary. Best wishes. Tina Shantz Mullen

    Posted by Tina J. Shantz Mullen | April 12, 2013, 3:07 am
    • Thank you so much, Tina!
      I’m so happy to hear that not only could you donate, but that you’re kids aren’t at risk for PKD! When I hear about families that are affected by it, multiple sick people, my heart breaks.
      Please email a picture with the date & place (hospital) of your donation. Though we can’t add anymore interviews, we will be having a photo montage of all the other donors who have kept in touch with me.
      LOVE the license plate!
      Have a GREAT Friday!

      Posted by fabamy | April 12, 2013, 3:10 am
  22. On October 9th 2012, my 20 year old daughter donated her kidney to save the life of my 15 year old son. He had been on dialysis for 14 months and was getting sicker. It had truly been a blessing! We did post out need for a kidney on social media and several people stepped up to offer their help. However, unfortunately we could not find a match – until my daughter was tested.

    Posted by Donna Barney | April 19, 2013, 7:49 pm
  23. It was great to finally meet you in person Amy! I hope the rest of your trip goes well! Love ya!!

    Posted by Karol Franks (@okarol) | May 4, 2013, 1:26 am
  24. It was awesome, Karol!!! Thanks for feeding us! XOXOOXO

    Posted by fabamy | May 4, 2013, 2:05 am
  25. I saw the article in Az Central and was very moved. I think what you’re doing is awesome. This is a great story that needs to be heard.

    My niece was born missing most of her cerebellum and will be in special need for her whole life. She’s a very happy if unhealthy 21 year old now.

    A few years ago she got pretty sick. Her kidneys were bad. She needed a new one. I know it’s easy to help those you love but she’s especially sweet, has been all her life. It was very easy for our very large family to come together on this and do what we could.

    I was unable to donate a kidney because I’m HIV positive but everyone else that could soon had tests done and my little brother, he’s 32, was a match. He happily gave her a kidney and they both came out of it well.

    If you are interested in interviewing them contact me and I’ll see what I can do.

    Posted by Ben | May 10, 2013, 3:48 am
    • Thanks so much, Ben! While I don’t need anyone else for this film, that doesn’t mean I won’t need more donors in the future! I really appreciate you reaching out to me. By the way, they can now take donations from those who are HIV+, as long as they have kept up on their meds.
      Your support means the world to me!

      Posted by fabamy | May 10, 2013, 4:47 am
  26. Hi Amy. I’m in the process of becoming an altruistic donor myself. I’ve been fully approved and my surgery is currently scheduled for June 4th. And there currently exists the possibility of my starting a 3 transplant donor chain. My coordinator is currently working the matches and in discussions with one of the pairs. I was motivated to do it by having read a story about an altruistic donor a few years ago and then finding out last year that my good friend’s wife had gotten her life back thanks to a kidney donation from a friend. And I wanted to help give someone (anyone) a chance at getting their life back.

    Posted by Todd Campbell | May 15, 2013, 1:19 pm
  27. I am a donor. I had a child after and would love to help

    Posted by springwatr762 | March 25, 2014, 3:55 am

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